Traumwind - A Guide to Retinitis Pigmentosa

With so many variations in the symptoms and effects, it is not surprising that the public find RP a difficult condition to understand. When many with RP can still see to read or gaze into the distance, to pick out landmarks or respond to a smile, it is hard to appreciate that they may have serious visual limitations. Yet it is so important for mutual understanding, especially within the family, that the normally sighted person should recognise and comprehend the difficulties of RP. For example, a person experiencing the early stages of RP may have almost perfect day vision but at night, in brilliant sunshine or in rapidly changing light conditions, the same person may react as if they are almost totally blind. Loss of part of the visual field is not always understood. As a person with normal sight stares ahead, they will see objects to either side, above and below the point on which their eyes are fixed. We often hear the expression "I saw it out of the corner of my eye". Many people with RP lose this facility.

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Martin Spernau
© 1994-2003

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